Condition Solutions
Haemoglobinopathy Patient Management
Digital patient management software built specifically for haemoglobinopathy services — connecting patients and clinical teams to improve outcomes and reduce the burden of reactive, crisis-led care.
The Specialty
Connected Care for Haemoglobinopathy Services
Haemoglobinopathies are a group of inherited blood disorders affecting haemoglobin — the protein in red blood cells that carries oxygen. The two most clinically significant conditions in the UK are sickle cell disease and thalassaemia.
Both conditions share a common set of clinical management challenges: fragmented data, poor medication adherence, reactive rather than proactive care, and an NHS infrastructure that was not designed to support life-long condition management at scale.
ProtoFlex addresses these challenges head-on — with condition-specific digital pathways that connect patients, carers and specialist clinical teams into a single, coordinated care model.
Read our TechUK guest blog ↗The Scale of the Challenge
17,000+ people with SCD
The UK has the largest population of sickle cell patients of any non-endemic country in Europe
£50m annual NHS spend
Driven largely by avoidable A&E admissions and unplanned bed days for sickle cell crises alone
50–70% of crises are preventable
With better medication adherence and proactive clinical monitoring — the core of what ProtoFlex delivers
Clinical input from NHS trusts
Clinical leads, community teams and key stakeholders from a number of NHS trusts have shaped the design
Condition Solutions
Dedicated Models for Each Condition
Each haemoglobinopathy has distinct clinical needs. ProtoFlex delivers condition-specific pathway models that reflect real clinical workflows — not generic templates.
Treating other haemoglobin disorders? ProtoFlex's generic clinical pathway model can be adapted for any haemoglobinopathy — from HbSC disease to haemoglobin E disorders.
Talk to us about your conditionThe Approach
Proactive, Connected, Configurable
Three principles that run through every ProtoFlex haemoglobinopathy solution — reflecting what clinical teams and patients told us they need most.
Proactive
Configurable monitoring thresholds surface deteriorating patients before a crisis develops. Real-time cohort visibility means your team can intervene early — not reactively in A&E.
Connected
Patients, carers and clinical teams all contributing to a single, unified care record. ProtoFlex Connect links to existing NHS systems — no data silos, no manual reconciliation.
Configurable
Clinical leads configure workflows, alert logic and patient-facing content to their local protocols — no developer required. Your service, your rules.
Clinical Input
Developed With NHS Clinical Teams
ProtoFlex haemoglobinopathy solutions have been shaped by clinical leads, community teams and key stakeholders from a number of NHS trusts, who have generously volunteered their time and insights to help develop a model that spans the different strands of healthcare — ensuring workflows reflect real clinical practice, not assumptions.
NHS Trust Clinical Leads
Specialist haematology consultants providing design input on adult SCD pathways, clinical governance and data requirements
Community Teams
Nurses, care coordinators and allied health professionals contributing insight into patient management and care coordination across settings
Paediatric & Transition Specialists
Paediatric clinical input ensuring the platform supports paediatric care and the transition to adult services
Interested in how ProtoFlex integrates with your existing systems? Read about NHS interoperability or our companion protocols approach.