NHS Pathway Software

Solutions for Every Rare & Chronic Condition

Bridge the "EPR Gap" with clinical systems configured specifically for the unique surveillance and management needs of underserved conditions.

The Challenge: Why Rare Diseases are "Orphaned" by Big IT

Most NHS trusts are moving towards large-scale Electronic Patient Record (EPR) deployments. While these systems are vital for hospital-wide administration, they are built for volume. Rare and chronic conditions — often affecting small patient cohorts with highly specific clinical needs — rarely receive the configuration depth they require.

This is the "EPR Gap": the space between a general-purpose record and a specialist clinical pathway. In this gap, clinicians are forced back to spreadsheets, paper charts, and fragmented data.

ProtoFlex was built to close this gap. Our platform uses configurable clinical models that can be rapidly adapted for any condition, providing first-class digital support without the wait for an EPR roadmap update.

Clinical Models for Complex Care

We don't just list conditions; we support clinical workflows. Any rare or chronic disease can be mapped to one of our core digital models.

Surveillance & Longitudinal Monitoring

Ideal for conditions requiring lifelong monitoring of biomarkers, imaging, and physiological trends to prevent deterioration.

  • Automated tracking against NICE or specialist guidelines
  • Long-term visualisation of results (e.g. Ferritin, PFTs, eGFR)
  • Automated notifications for "lost to follow-up" patients

Relevant for conditions such as:

PNH (Paroxysmal Nocturnal Haemoglobinuria) Gaucher Disease Fabry Disease Cystic Fibrosis Muscular Dystrophy Pulmonary Fibrosis Chronic Kidney Disease

Multi-Disciplinary Team (MDT) & Shared Care

Designed for complex conditions that span multiple specialties, trusts, and community care providers.

  • Structured MDT data capture and outcome tracking
  • Multi-organisational care plans accessible by all stakeholders
  • Secure data sharing between tertiary centres and general hospitals

Relevant for conditions such as:

Rare Cancers Motor Neurone Disease (MND) Huntington's Disease Lupus (SLE) Vasculitis Complex IBD Primary CNS Tumours

Patient-Led & Remote Management

Empowers patients with rare conditions to manage their health between hospital visits, reducing avoidable admissions.

  • Remote Patient-Reported Outcome Measures (PROMs)
  • Personalised health dashboards and symptom tracking
  • Direct communication with specialist care teams

Relevant for conditions such as:

Haemophilia Severe Asthma Myalgic Encephalomyelitis (ME/CFS) Long COVID Haemoglobinopathies Rare Autoimmune Conditions

How Quickly Can We Launch?

Because our platform is configurable rather than hard-coded, we can often move from clinical guideline to a production ready, integrated pathway system in less than 12 weeks. We work with your clinicians to map your specific data items and workflows into our proven models.

Contact Us

Let's Talk About Your Service

If you'd like to discuss how ProtoFlex can help your organisation, fill in our contact form and a member of the team will get in touch.

Our Location

C/O Ampa Holdings Llp, Level 19, The Shard, 32 London Bridge Street, London SE1 9SG

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