NHS Patient Management Software — Gastroenterology

Coeliac Disease Patient Management Software

ProtoFlex CPMS gives NHS gastroenterology teams a complete coeliac patient management system — integrating validated symptom scoring, nutritional surveillance, dietary compliance monitoring and Patient Initiated Follow-Up into a single connected platform.

A Complete Coeliac Patient Management System

ProtoFlex CPMS combines structured clinical pathway management for gastroenterology teams with integrated patient self-management between appointments — capturing the data clinicians need while empowering patients to take an active role in managing their condition and initiating follow-up when it matters.

Clinical Pathway Management

A unified view of the coeliac patient population — giving clinical teams the data they need to manage caseloads proactively, prioritise follow-up and meet NHS audit requirements.

Traffic light dashboard across Coeliac-SS, Coeliac-AS and Coeliac-OS
Nutritional surveillance — iron, vitamin B12 and bone health tracking
CDAQ PROMs capture at baseline, 6-month and 12-month intervals
Annual review scheduling and completion tracking
Shared care coordination between secondary and tertiary care
Timeline score trends for clinical review and audit

Patient Self-Management & PIFU

Structured digital tools that empower patients to manage their coeliac disease between appointments and initiate contact when their clinical picture changes — reducing unnecessary routine follow-up while ensuring timely care.

Pre-appointment Coeliac-SS symptom score completed by patients
Gluten-free diet adherence self-reporting and tracking
Patient Initiated Follow-Up — contact when symptoms change
CDAQ quality of life assessments at structured intervals
Dietary guidance and condition-specific education content
Structured escalation pathway — right care at the right time

Built on the ProtoFlex Platform

The coeliac solution is built on the same configurable ProtoFlex platform used across complex and chronic disease pathways. Clinical teams retain full control over how the pathway is configured — adapting workflows, alert thresholds and patient-facing content to local protocols without developer intervention.

Explore the platform

Need to extend your current system rather than replace it? See how Companion Protocols work, or explore our NHS interoperability approach.

Three Data Summaries. One Unified View.

ProtoFlex CPMS integrates three condition-specific composite scores — presented through a configurable traffic light display — giving clinical teams a structured summary of each patient's recorded data without manual aggregation, for rapid clinical review.

Coeliac-SS

Symptom Score

A patient-reported pre-appointment symptom assessment. Patients complete the Coeliac-SS before each clinical contact, giving clinicians a structured view of current symptom burden before the consultation begins.

Coeliac-AS

Associative Score

A structured record of the patient's associated medical history relevant to coeliac disease — capturing comorbidities, related autoimmune conditions and other clinical factors that inform overall disease management.

Coeliac-OS

Objective Score

An objective data score combining recorded values for gluten-free diet adherence, nutritional markers (iron, vitamin B12) and bone health — configurable data fields structured to reflect the information your clinical team considers important for this patient group.

Traffic Light Visualisation

All three scores are presented through a configurable traffic light display — giving clinical teams an at-a-glance view of each patient's recorded scores and reducing manual data aggregation so teams can focus their attention where they choose.

CDAQ PROMs

The Coeliac Disease Assessment Questionnaire (CDAQ) is integrated as a validated PROMs instrument — capturing patient-reported symptoms, quality of life and dietary adherence at baseline, 6 months and 12 months, with trend data for review.

Patient Initiated Follow-Up

PIFU is built into the care model — stable patients move off fixed follow-up schedules and initiate contact when their clinical picture changes. This aligns with NHS England's targets to reduce unnecessary outpatient appointments while ensuring responsive care.

The Case for Digital Coeliac Management

Coeliac disease is one of the most common autoimmune conditions in the UK — a lifelong diagnosis requiring sustained dietary management, nutritional surveillance and specialist follow-up. Without structured digital tools, monitoring is fragmented, adherence is hard to measure, and avoidable long-term complications go undetected.

Scale of the Condition

1 in 100

People in the UK have coeliac disease — with around 700,000 diagnosed and a significant number still undiagnosed, placing ongoing demand on gastroenterology services.

The Adherence Problem

~50%

Of coeliac patients have ongoing mucosal damage due to inadvertent gluten exposure — even among those who believe they are following a gluten-free diet.

The Appointment Gap

6–12 months

Typical interval between outpatient follow-up appointments for stable coeliac patients — leaving nutritional deficiencies and dietary failures to accumulate without a structured clinical touchpoint.

The PIFU Opportunity

2026 target

NHS England's target for PIFU adoption across outpatient specialties — with coeliac disease an established candidate pathway for clinic-sparing approaches that free capacity without compromising care.

The management challenge is not diagnosis — it is sustained monitoring. Once diagnosed, coeliac patients face a lifelong requirement to maintain strict dietary adherence while managing the risk of nutritional deficiencies and long-term complications including osteoporosis, anaemia and, in rare cases, malignancy. Digital tools that help patients stay connected with their care team between appointments are increasingly central to how NHS services design chronic disease pathways.

Sources: Coeliac UK; NHS England Long Term Plan; NICE guideline NG20 (Coeliac disease: recognition, assessment and management); NHS England PIFU guidance (2021); NIHR coeliac disease research literature.

What Better-Connected Coeliac Care Can Deliver

By integrating patient-reported data with objective clinical scores and enabling PIFU pathways, ProtoFlex CPMS aims to support better adherence, reduce unnecessary outpatient appointments, and give clinical teams structured nutritional data to inform their clinical review.

Outpatient Capacity

Fewer appointments

PIFU-enabled pathways remove stable patients from fixed follow-up schedules — releasing outpatient capacity for patients who genuinely need clinical attention.

Nutritional Visibility

Structured data reviewed more regularly

Nutritional data — iron, B12 and bone health — structured and visible as part of the review cadence, not only at annual appointments.

Dietary Adherence Support

GFD adherence tools

Structured adherence self-reporting and targeted dietary education give patients and clinical teams a clearer picture of gluten-free diet adherence between appointments.

Patient Empowerment

Better QoL

Patients with structured self-management tools and clear escalation pathways report greater confidence, improved quality of life and reduced anxiety about managing a complex dietary condition.

Developed With NHS Gastroenterology Clinicians

The ProtoFlex Coeliac Patient Management System has been developed in collaboration with NHS gastroenterology clinicians. An application for NIHR funding has been submitted to support a formal research programme that would evaluate clinical effectiveness, usability and cost-efficiency across pilot and multi-site deployment phases.

NHS Clinical Co-Design

Specialist gastroenterology consultants and dietitians providing design input on coeliac pathways, clinical score criteria and patient-facing content.

NIHR Funding Application

An NIHR funding application has been submitted to support a prospective mixed-methods research programme — evaluating clinical outcomes, patient experience and cost-effectiveness across pilot and multi-site phases.

Aligned with NHS Priorities

Designed to meet NHS England's PIFU adoption targets, support clinic-sparing pathway development, and contribute to the NHS Long Term Plan's goals for digital integration in chronic disease management.

"ProtoFlex connects care pathways for complex and rare diseases — enabling seamless coordination across NHS services and putting patients at the centre of their own care."

Marc Warburton, Managing Director — ProtoFlex Software

Frequently Asked Questions

What are the Coeliac-SS, Coeliac-AS and Coeliac-OS scores?

These are three condition-specific composite scores built into the ProtoFlex CPMS. The Coeliac-SS (Symptom Score) is a patient-reported pre-appointment symptom assessment. The Coeliac-AS (Associative Score) captures associated medical history relevant to coeliac disease. The Coeliac-OS (Objective Score) combines gluten-free diet adherence data with nutritional markers — iron, vitamin B12 — and bone health indicators. All three are presented to clinical teams through a traffic light display for rapid, structured clinical review.

Does ProtoFlex CPMS support Patient Initiated Follow-Up (PIFU)?

Yes. PIFU is a core design principle of the ProtoFlex CPMS. The system enables stable coeliac patients to initiate follow-up contact when their symptoms or circumstances change, rather than attending routine outpatient appointments on a fixed schedule. This aligns with NHS England's targets to reduce unnecessary outpatient appointments and supports the shift to more patient-centred, clinic-sparing care pathways.

Does the CPMS capture Patient Reported Outcome Measures (PROMs)?

Yes. ProtoFlex CPMS incorporates the Coeliac Disease Assessment Questionnaire (CDAQ) as a validated PROMs tool. Patients complete the CDAQ at structured intervals — capturing symptoms, quality of life and dietary adherence — with results tracked over time and presented alongside clinical scores to support shared decision-making and longitudinal outcome measurement.

Can ProtoFlex integrate with our existing gastroenterology EPR?

Yes. ProtoFlex Connect supports NHS interoperability via HL7 FHIR and API integration. The CPMS can run as a companion alongside your existing EPR — adding coeliac-specific pathway management and patient engagement without replacing your core clinical system.

Has the CPMS been submitted for NIHR funding?

The ProtoFlex CPMS has been developed in collaboration with NHS gastroenterology clinicians and an NIHR funding application has been submitted. If funded, the research programme would evaluate clinical effectiveness and usability across a pilot cohort of 100 patients, followed by multi-site implementation across 10 clinical sites — with outcomes measured against clinical metrics, patient experience, cost-efficiency and alignment with NHS PIFU targets.

Interested in the Coeliac CPMS?

Whether you're a gastroenterology lead, service manager or digital health lead, we'd welcome the opportunity to discuss how ProtoFlex CPMS can support your coeliac service.

Get in touch Explore the platform All condition solutions

For Gastroenterology Leads

See how ProtoFlex CPMS maps to your existing coeliac pathways and explore a configuration that fits your service — including PIFU pathway design and integration with your existing clinical systems.

For Service Managers

Understand the case for digital coeliac management — reduced outpatient demand through PIFU, improved nutritional surveillance, and measurable improvements in dietary adherence and patient outcomes.

For Digital Health Leads

Understand ProtoFlex's integration architecture, IG and DSPT posture, and how the CPMS connects with your EPR, results systems and existing patient-facing tools.

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If you'd like to discuss how ProtoFlex can help your organisation, fill in our contact form and a member of the team will get in touch.

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