ProtoFlex is working with leading haemoglobinopathy clinicians — specialists in sickle cell, thalassaemia and rare anaemias — to implement a patient management system that supports all aspects of the care pathway for patients with these conditions.

Benefits of solution:

  • Provides an integrated care solution bringing together acute, community and patients
  • Promotes patient engagement and empowerment
  • Reduces unnecessary clinic visits and reviews
  • Avoids A&E attendances, allowing patients to go directly to the on-call team
  • Supports clinicians and carers in their day-to-day work
  • Saves time in clinics and MDTs as all required data is available
  • Supports the Annual Review process and ASCAT registry submission

User specific portals:

  • Consultant and nurse led clinics
  • Tracking of medication and therapies
  • Transfusions
  • Pain crises and associated A&E attendances
  • Acute and chronic complications
  • Adverse events
  • Transplant and gene therapy eligibility
  • Generation of care plans
  • Annual reviews and associated registry submissions
  • Reports and clinic letters
  • Local and regional MDTs
  • Community care

Fully integrated patient portal:

  • Receive and submit questionnaires (PROMs, PREMs)
  • Communicate with the clinical teams to report adverse events as and when they occur
  • View and contribute to their clinical record
  • View upcoming appointments and other care activities
  • Access key information via context sensitive signposting

For more information or to arrange a full demonstration please contact us.